
Privileged Presence
Personal Stories of Connection in Health CareTemporarily Out-of-Stock Available to Pre-order
ISBN: 9781936693696
Paperback
363 Pages
Subjects:
Popular medicine & health
Now fully updated, this is a collection of over 50 stories that reflect peoples health care experiences from the points of view of compassion, communication, collaboration, respect and dignity or their absence. This timely book uses real-world experiences recounted by patients and their families, nurses, doctors, and other healthcare professionals to illustrate what works and what does not, what increases or diminishes peoples sense of confidence and well-being.
Liz Crocker's working career has included teaching, broadcasting, writing for newspapers and magazines, and running several businesses. She has owned and run a children's bookstore since 1978 and now has an environmental business with five stores across Canada. Liz has held leadership positions with a number of health care organizations and is Vice President of the Institute for Family-Centered Care.
Liz Crocker has worked in teaching, broadcasting, and journalism. She has owned and run a children's bookstore since 1978 and now has an environmental business with five stores across Canada
Bev Johnson is President and Chief Executive Officer of the Institute for Family-Centered Care in Bethesda, Maryland. She is a nurse and a trustee of several organizations. She has provided on-site technical assistance and training to over 100 hospitals in North America and worked with the Association of American Medical Colleges on family-centered practice. She is the co-author of several books and the producer of award-winning films in the field.
Bev Johnson is the president and CEO of the Institute for Family-Centred Care in Bethesda, Maryland. She is a nurse who has provided on-site technical assistance and training to more than 100 hospitals in North America and worked with the Association of American Medical Colleges on family-centred practice. She is the co-author of several books and the producer of award-winning films in the field.
These are the people who bear witness to what is miraculous and what is wrong with health care... Once youve had the privilege of reading this book, pass it on -- its the best book you will ever give as a gift. -- Nancy DiVenere, president, Parent to Parent USA
Should be required reading for all health care professionals, especially students. Underlying the quiet dignity of each story is a powerful message about how to become a more skillful clinician. -- William Schwab, MD, professor, department of family medicine, University of Wisconsin School of Medicine & Public Health
The 'privileged presence' of this books title runs full circle, from the patients, family members, and caregivers who tell their stories of pain, healing, cruelty, and kindness in medical care, to their narrators, to the reader who is invited to witness their intimacies. -- Michael Rowe, Ph.D., Yale University School of Medicine, and author of "The Book of Jesse"
"Privileged Presence is a sometimes sobering and sometimes heartening reflection of the variability of the healthcare experience. [...] it is an invitation to healthcare professionals to dare to recognise themselves in the stories, good and bad, to rise to the challenge to replicate what they do well and to have the courage to identify what they need to change. It is an invitation to self improvement and personal insight. It works as a learning tool because the stories evoke feelings which, in turn, influence behaviour in ways which facts and data alone cannot. Privileged Presence is a timeless manual for all in healthcare in that it both challenges and sustains." -- Margaret Murphy, Patient Advocate, External Lead Advior, World Health Organization for Patient Safety Program
"What a privilege it is to read Priviliged Presence. This book taught me volumes about the opportunities we all have to make real connections during some of the most difficult times of our lives. These remarkable true stories are sometimes cautionary, often inspiring, and never less than totally frank. I can't imagine that there's anyone seeking or involved in healthcare who wouldn't benefit from reading and discussing these candid and thoughtful accounts." -- Will Schwalbe, author, "The End of Your Life Book Club"
"I found myself pulled into the fabric of these stories, relating as a mom, a caregiver, and a widow and reliving many of my own personal experiences. Some stories are agonizing and tender, offer hope or describe simple human kindness, and some pull back the veil on areas in healthcare that absolutely need to change. As I finished the book, I felt a resolve to be part of improving what can become better and applaud the courage and compassion of those who dare to embrace the humanness of healthcare. I hope that the next healthcare worker who delivers care to my children, my parents, or to me has read this book." -- Sue Sheridan, Director of Patient Engagement, Patient-Centered Outcomes Research Institute (PCORI)
"As I read Privileged Presence, I dont feel like I am reading a textbook. I feel like I am listening to someone share their story, and I feel grateful to have heard/read their story. When I look at Privileged Presence I think to myself 'Why cant all textbooks be like this one?'" -- Healthcare student
We understand the importance of accessibility for all of our customers, including those with disabilities. While our website may not currently meet the Web Content Accessibility Guidelines (WCAG) 2.1, Level AA, we are actively working towards compliance and constantly seeking ways to improve the user experience for all of our customers.
To that end, we have implemented a variety of accessibility tools provided by third-party app, AppifyCommerce. These tools include features such as keyboard navigation, high contrast mode, font resizing, and alternative text for images read focus, various cursor sizes. We have also incorporated tools to help with visual impairments, such as screen readers and text-to-speech functionality.
In addition to these technical solutions, we have also made a commitment to providing clear and easy-to-understand information on our website. This includes using simple and straightforward language, providing alternative text for images and videos, and including clear and detailed product descriptions.
We understand that accessibility is an ongoing effort and that there may be areas of our website that are not fully accessible. If you have any difficulty accessing our website or have any suggestions for improvements, please contact us at [email or phone number]. We will make every effort to respond to your request as soon as possible and work towards resolving any issues you may have encountered.
We also strive to provide equal access to our products and services, including our online store and customer service channels. So, we are always open to feedback, suggestions, and ideas on how we can continue to improve accessibility on our website and in all aspects of our business.
Our ultimate goal is to ensure that all of our customers, regardless of ability, have a positive and seamless experience when visiting our website and purchasing from our store. Thank you for visiting our store and for your patience as we continue to work towards full compliance with the WCAG guidelines.